The Truth About “The Parkinson’s” (raw, real, and uncut)

I just listened to an episode of Amy Porterfield‘s podcast, Online Marketing Made Easy. That episode shook me up (hah hah, the first Parkinson's joke of the episode). After hearing Amy speak so powerfully, I felt an overwhelming sense that I needed to say a few things publicly.

Click here to download or listen to this episode now.

I'm sharing not because it's important to me (believe me, I'd rather not be talking about this) – but because it's important to you.

WARNING: This episode may not be suitable for those uncomfortable with the cold, hard truth.

Ray Edwards is a world-renowned copywriter and communications strategist, writing for some of the most powerful voices in leadership and business including New York Times bestselling authors Jack Canfield and Mark Victor Hansen (Chicken Soup for the Soul) and Tony Robbins. Ray is a sought-after speaker and author, hosts a popular weekly podcast, and blogs at RayEdwards.com.

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  • K. Steven Esteban

    My brother has Parkinson’s , and you got my attention.
    K Steven Esteban youtube

  • Aase Koppergaard

    Do you know of Dr Joe Dispenza? He is teaching common people doing the uncommon. Visit his YouTube channel : https://www.youtube.com/user/drjoedispenza and listen to people tell their story of how they healed from diseases docters tell us are fatal or uncurable. There might be hope for you to heal yourself from Parkinson by using Dr Dispenza’s methods. I wish you all the best.

  • Beautiful Ray. You’re very courageous and I admire the bold moves you’re making here. Being honest with the world is incredibly challenging, but your authentic story is more powerful than any attempt to look perfect. Thanks for sharing a bit of your life with us!

    • Thanks Jeff – I treasure our friendship!

  • Anthony Renna

    Ray, thanks for showing the courage to discuss what you are going through. What an inspiration, but I do not expect anything else from you, now or in the future. You have been such a great mentor and I know you will continue to be for so many. I have learned so much from you. You might remember from the coaching that I am not religious (glad we didn’t hold that against each other, haha!) but it never stopped me from being part of anything you do, and this certainly would never. I do not pray for myself, but I will pray for you. The world needs you and more like you. Thanks for being you, I feel lucky to know you.

    • Anthony, of course I remember. You are an extraordinary person, and I learned as much from you in the coaching program as I taught. Thank you for these words – they mean so much to me!

  • Bob Sorensen

    Thanks for being honest Ray. It is such an encouragement for me to open up about those secret fears I have.

  • Sandra Beatty

    Hi, Ray
    Thank you so much for sharing your thoughts and deep struggles. It came at just the right time. Just before I listened to your podcast, I was struggling with some feelings about my own “failures” and not wanting to accept the things I struggle with. I appreciate that you asked the question about what is holding us back. There is a scripture that I have memorized that coincides with what you’ve said. It’s in the Book of Mormon, Ether 12:27, “And if men come unto me I will show them their weakness. I give unto men weakness that they may be humble; and my grace is sufficient for all men that humble themselves before me; for if they humble themselves before me, and have faith in me, then will I make weak things become strong unto them.” Thank you for sharing your faith.

  • Love you brother!

  • Aaron

    Ray,

    My dad, too, suffers with Parkinson disease.

    He’s 85, and he’s been battling this disease for the last 30 years.

    He can’t take a step backward. His feet get frozen in place when standing, and he has to rock his body to start ambulation.

    And I have a friend who wrote a book on the issue from a Christian point of view.

    https://www.amazon.com/Way-Grace-Surrender-Renovare-Resources-ebook/dp/B00P9CB7KQ/ref=sr_1_1?ie=UTF8&qid=1508452208&sr=8-1&keywords=marjean+brooks

    I hope you find it helpful.

    I hope one day to meet you face to face. I’d enjoy getting to know a you, both professionally and as a dear brother in Christ.

    Aaron

    P.S. Have you been following what’s the nation of Israel has been doing with Parkinson’s?

    http://www.jpost.com/Business-and-Innovation/The-1-billion-Israeli-technology-to-help-regulate-Parkinsons-disease-501731

    https://crownheights.info/jewish-news/528902/israeli-company-creates-breakthrough-parkinsons-treatment/

  • John Rallison

    Sure appreciate your honesty. Amy’s podcast was inspirational and so is yours. You’re right about hiding weaknesses/challenges. I never would have thought that about Amy. And having just met you recently, I didn’t perceive the extent of your Parkinson’s-related issues. I respect both of you more than ever because you a) have shared your stuff and b) don’t let your stuff stop you or define you. . I like what you said, “Don’t wallow but don’t hide.” You continue to help people prosper with purpose and that is awesome. You have helped me. I will be praying for you.

  • Gloria Riley

    Thanks for your honesty and boasting in your weakness! May God Bless You!

  • Ray,
    Thank you for sharing so honestly. It is no coincidence that you’re sharing this at the time you’re also getting your message out about permission to prosper. If we have permission to prosper, that has to include permission to rest. Restore. Rejuvenate. It also has to include permission to be vulnerable. After all, life is about human connection and love.
    You’ve shown us that today. By being vulnerable, you not only give us permission to do the same, but show us how to do it with integrity and love.
    I thought you were doing well. So I stopped praying for you. Now I know better. Know you are in my prayers, even as I battle with the same superhero tendencies and wear myself down.
    God’s strength is indeed made perfect in weakness. Love you, Brother.
    Kathleen

  • Nauman

    Hi Ray, thank you for being so vulnerable and sharing your story from the depths of your being. It takes a lot of courage to share a personal story like yours. I’d like to offer my help. I am a physician and a health/healing coach/advisor and I’ve written and just released a book entitled, ‘Healing From The Inside Out: Overcome Chronic Disease and Radically Change Your Life,’ and I’d like to send you a complemtary copy. Let me know if you’re interested and where I can mail it to you. If you do read it, we should talk afterwards. I look forward to hearing from you.

    • Thanks Nauman – sure, I’d love to read your book. Send it to:

      Ray Edwards International, Inc
      2910 E 57th Ave
      Ste 5 PMB #330
      Spokane, WA 99223

      • Nauman

        I mailed it to you yesterday through priority mail. Let’s connect once you’ve had a chance to dive into my book.

  • You have my smiling from ear to ear, Gail. Thanks!

  • Thanks Pat! Yeah, the “dog thing” just shows, rgh?

  • Thank you Amy!

  • Oh DIane – it is I who am blessed to know YOU. Thank you for these words of wisdom.

  • Amen!

  • Thanks Rhonda – so good to hear you are off painkillers!

  • Dallas, I too remember our conversation at Dan’s place, quite well. (I was listening!)

    • Dallas Demmitt

      Thanks Ray. I’m trusting God will give us both favor to have more practice listening to each other’s Heart and Head. I’m serious about being available to practice LEADING WITH MY EARS. (Dan really likes LWME as my mantra.) 😉

      I think this podcast needs to be “chunked” to be deeply heard. Then discussed with two or three others as to what each heard. Powerful, meaningful catalyst for personal discovery.

      I’m sad I’m not in a position to join your latest offering. I’m not keeping up with what I already have from you and Michael. Looking Forward!

  • Praying for you, James!

  • Marsha Taylor

    Hello Ray
    Thank-you for sharing your story. I’d like to share a website that might be transformational for you. The site is http://www.herbdoc.com. Dr. Richard Schultz is an American Natural Healing doctor whose vision and methods I believe you would resonate with. If you click on the link to his blog, you’ll find a book entitled “There Are No Incurable Diseases”. You can read it for free online. Thank-you for all your inspirational and entrepreneurial advice.

  • Mark Eastman

    Ray,

    I am not a big commenter of online posts. Often I feel that what I have to say isn’t needed to further the conversation or that is of no value to the topic (I might need to work on that). I have been following your podcasts, blogs and webinars for a while. I just wanted to let you know that I think this was my favorite. I loved your openness and honesty in this message. It was like we were sitting down over a cup of coffee (at some really great coffee shop in the northwest) and having a one on one conversation about life. Thank you for sharing and know that I will be praying for you and yours.

    Mark

    • Thank you so much Mark – I appreciate you!

  • Jay White

    Hey buddy–I know we’ve lost touch over the years, but I really admire how you’re dealing with this and your spiritual walk. Inspiring to say the least. Please know that Ronda and I are praying for you, and if there’s ever anything we can do for you, please let us know.

    • Jay! Too long since we last spoke. Love to you – and thank you.

  • Eric Gale

    Ray, Thank you for being so honest and vulnerable. This is why I think so many people listen to you. You are a man of integrity. I was thrilled to meet you last month at Tribe Conference. Praying for you, Lynn, and Sean.

    • I enjoyed meeting you, too. Thanks for your prayers and kind words.

  • Ray,

    I have heard you speak about this before, and over the years since your diagnosis–knowing that you wrestle with this awful disease–I always marvel at your amazing ability to encourage all of us out here in the net-world. It is because of WHO you are that you are all the more a precious and a wonderful example of the way in which a godly man deals with adversity. Praying for you is our special privilege, and it helps us to remember to bring you a stone of compassion on which to sit, as we come alongside you and hold up your arms like Aaron and Hur did for Moses. You will remember that the Israelites won the battle that day…
    Sincerely, ShariLee, Run4thePrize of the High Calling in Christ Jesus

  • Rob Fischer

    Ray, thank you so much for sharing from your heart! You’re a dear friend and brother in Christ. Thank you for having the courage to say what you did in this podcast and thank you for giving so much of your life to so many through your work. I certainly have benefited much from both our friendship and just knowing you as a person, but also through everything you do. I’m praying for you and I admire you and all you’re doing! Rob Fischer

    • Rob, you and Linda mean the world to me – thanks for your friendship, your coaching, and your caring.

  • Refreshingly honest, Ray. This is by far the most humbling message I’ve heard in a long, long time. Thank you for being such a voice of encouragement.

  • HI Ray. Thanks for sharing with us. PLEASE take care of yourself. You mean a lot to a lot of people, and we all want you to be happy & enjoy the life that was created while helping so many realize their dreams.

    You have NO idea how much you mean to so many. <3

    • Kymmberly – thank you so much. I shall take better care of myself – promise.

  • KenMcArthur

    Hey Ray,

    I wish that I could tell you I think about you every day. (I don’t. It’s more like once a week.) You have a standard that I admire, but it doesn’t have to do with looking perfect. It’s more about being real.

    One of my professors used to wear a T-Shirt that said, “Life is hard, and then you die.”

    I’m pretty sure that life for everyone is hard and so far the pattern has been that we die.

    You my friend are always thinking of how what you experience (good and bad) can benefit others.

    It’s the small things that count.
    You make a difference whether you want to or not.
    One step at a time … It all adds up good or bad.

    As our friend Joel Comm would say … “Keep doing the good stuff.”

    It counts.

    Love you my friend.

    Ken

  • Your raw courage fills me with with the desire to reach out and give you a GREAT big loving hug all the way across this internet highway. Thank-you for being the model for authentic messaging and transparency. In Mike Kim’s community today and he talks about you all the time with such gratitude. My very first online product that I purchased (10 years ago!!) was yours! I have been an ardent supporter of yours ever since. Thank-you Ray for showing your leadership and your pure heart. Take care, rest well and we’ll be here when you regain your strength. In the interim, we’ll be modeling your integrity as we help lift up others in our communities.

    • It CAN’T have been 10 years ago – can it? I remember you well. You are unforgettable! Thank you, Elizabeth.

  • Ray, your strength in the struggle is such an inspiration. Thank you so much for your transparency and the way that you lead by example… even if someone else gets the ball rolling (Thank you Amy), you don’t miss the opportunity. You are such an example not only in this, but in your entire life. It’s an honor to be a small part of it.

  • Wil Reed

    Hi Ray, we’ve never met but I’ve been following you for a while now. I appreciate your sharing. I’m just starting out as a copywriter, and have struggled with opening up about my struggles with autism and social anxiety. I’m also a believer in Jesus, and it’s good to know I’m not alone. We’re all broken in one way or another. I’m praying for you.

  • Dallas Demmitt

    Ray, I want to thank you for HONORING us with your total openness about what’s happening currently in your life, while on your journey with God. (We’ve met briefly at an event and had a conversation about listening – I will never forget.). Now I pray this podcast will be passed forward and be discussed by many others. Our world if full of noise and no one is listening to God or each other. Thanks again.

  • Deal Curtis

    From the words of M.L.K. life most persistent question is what are you doing for others. You Ray has help so meny people with the simple truth. I am thankful for having to have meet you through your podcast. Much love to you Ray..

  • Doc – thank you, my friend.

  • Mark Gillem

    Dear Ray,

    Thanks for telling of your struggles. We are among other things designed to be social creatures, and naturally we want to be well thought of.

    Relieving another of their burden / problem is a service we give as believers. Occasionally, we the givers are in need of being relieved or released from our own constraints. Isn’t it nice to know we can lean-in a bit once in awhile, while we gather our strength, upon the strong, capable arms of others. It is their service and their moment to do so. Even the Lord needed someone to bury him before sunset began the Feast Day.

    A follower… of one who so soon comes,

    Be at peace,

    Mark Gillem
    magillem@icloud.com

  • Amanda Risi

    Thank you, as always, Ray, for being YOU, for encouraging US and for helping US to encourage OTHERS. Some years now since our conversation, and I will always remember your kindness. How much you’ve helped me stay focused on what’s REAL. Lots of love to you Ray. Thank you for praying for US. Much appreciated.

  • I was particularly heartbroken to realize your difficulty now with typing/writing. Similarly, I often wonder how my life would be different if my voice were taken away. How would I respond?

    All of us now have, between you and Amy, excellent examples of how to do it well.

    I did not know just how far “the Parkinson’s” had progressed. When I didn’t see you but once or twice during the Tribe Conference weekend last month, I wondered to myself if you were struggling. I wanted to reach out to you. I didn’t. I’m sorry.